Showing posts with label intersex. Show all posts
Showing posts with label intersex. Show all posts

Sunday, November 2, 2014

How to Build a Dick (The Social Construction of Genitalia)

http://itspronouncedmetrosexual.com/wp-content/uploads/2012/01/1600-Genderbread-Person.jpg

From The New Inquiry, Vishnu Strangeways takes a social constructionist view of how we understand and co-create the idea of gentalia. Even at the level of biology, where XX and XY are most common (46.XX, 46.XY) there is no clear sexual binary but, rather, a collection of standard alignments, as well as a collection of variations . . . including 47.XXY (at risk for Klinefelter syndrome), 47.XYY, 48.XXXX, 48XXXY, 48XXYY and 48XYYY; and although increasingly rare, also 49XXXXX, 49XXXXY, 49XXXYY, 49XXYYY and 49XYYY.

Further, even in "normal" XY and XX individuals, the expression of secondary sexual characteristics can vary considerably (size, shape, alignment, coloring, and so on). There is no specifically "normal" genitalia, only a spectrum that incorporates a range of normal. Intersex people add a whole other layer to this, partly because it is not always obvious at birth and may not show up until puberty, if at all.

Consider these statistics:
Not XX and not XYone in 1,666 births
Klinefelter (XXY)one in 1,000 births
Androgen insensitivity syndromeone in 13,000 births
Partial androgen insensitivity syndromeone in 130,000 births
Classical congenital adrenal hyperplasiaone in 13,000 births
Late onset adrenal hyperplasiaone in 66 individuals
Vaginal agenesisone in 6,000 births
Ovotestesone in 83,000 births
Idiopathic (no discernable medical cause)one in 110,000 births
Iatrogenic (caused by medical treatment, for instance
progestin administered to pregnant mother)
no estimate
5 alpha reductase deficiencyno estimate
Mixed gonadal dysgenesisno estimate
Complete gonadal dysgenesisone in 150,000 births
Hypospadias (urethral opening in perineum or
along penile shaft)
one in 2,000 births
Hypospadias (urethral opening between corona
and tip of glans penis)
one in 770 births
Total number of people whose bodies differ
from standard male or female
one in 100 births
Total number of people receiving surgery to
“normalize” genital appearance
one or two in 1,000 births

Add to that, then, the discussion below about how we create our ideas of genitalia from conversations with peers, from sex education, from media, or (increasingly) from pornography, and the range of possible expressions is so staggeringly large that the "sexual binary" becomes laughable.

How to Build a Dick


By Vishnu Strangeways
October 27, 2014


Rorschach test, card #2, 1921


At the level of identity, genitals are made neither in the womb, nor in surgery, but in the mind.


Thinking critically about ­genitals—how they look, what they are, what they mean—feels like repeating a familiar word so many times that it starts to sound weird and implausible. The physical properties of genitals feel certain, but the material of this certainty is often hazy guesswork, drawn less from experience than from the imaginative processes that give our ideas of things substance in the mind.

As we grow up, many of us build our idea of genitals from a patchwork of clumsy childhood discoveries, chaste textbook renderings, and the aesthetic valorized in mainstream porn. This early understanding of what genitals should look like can even survive encounters with bodies that don’t correspond to it. Reality apparently doesn’t always have sufficient power to undermine our fixed and abstract mental images. It’s as if the idea of genitals is more real than their physical form, or the latter is real only insofar as it confirms the former.

This is partly because commonplace concepts of gender treat biological sex as determinative in a violent logic: Genitals means sex means gender. Essentialist accounts of gender appeal to medical science to reiterate a mind/body or gender/sex binary, without considering how scientific truth claims are shaped by the paradigm from which they have emerged. These accounts are often at odds with some of the physical realities they describe, such as the prevalence of sex chromosomes beyond XX/XY, or external genitalia that don’t resemble traditional archetypes of penis-testicles and vulva-clitoris-vagina.

When I studied anatomy, we learned the prescriptive architecture of biological sex as if it were inevitable fact. Yet our textbooks included depictions of bodies that didn’t conform to the supposedly universal forms, presenting them as strange and pathological. In medical school, few people could see that the very existence of these bodies was an effective critique of the certainty of biological sex. Outside the framework of my studies, I became increasingly suspicious of normative standards of sex and gender. Armed with experiences and critiques drawn from elsewhere in my life, I grew more and more critical of how medicine understands and processes gender by excluding those bodies that cannot be coherently inscribed into the present gender regime.

Even by medicine’s own scientific account, the human body does not automatically provide us with a strong distinction between “maleness” and “femaleness.” In early fetal development, the cells that go on to form reproductive tracts and genitals are initially indifferent, regardless of the embryo’s sex chromosomes. The building blocks for all reproductive and genital eventualities exist in the early embryo concurrently, waiting for cues. For the first trimester the external genitals remain indistinguishable: Each anatomical aspect has the genetic potential to be another with the right encouragement (glans of penis or glans of clitoris, surface of penis or labia minora, scrotum or labia majora, or in variable combinations of neither).

When a baby is born, if doctors think its genitals deviate from the expected norm, its body is surgically reconfigured. These bodies that differ from the genital ideal are often seen as aberrations. When we try to reflect objectively on how bodies are understood as “male” or “female,” we can see that the popular understanding of genitals as either/or doesn’t reflect the reality that the potential forms of external genitalia are in fact unpredictably multiple.

The idea that genitals have multiple potentials and that we can build them to fit our idea of them is important when it comes to genital reassignment surgery. This elegant surgery reconfigures anatomy on an aesthetic, functional and sensual level. Metoidoplasties, for example, bring forward the clitoris and unite it with skin from the labia to form a functional penis and scrotum. Phalloplasties involve taking skin from the arm or abdomen to produce a functional penis that, with an implanted device, can sustain erections capable of penetrative sex. In both phalloplasty and metoidoplasty, the presence of a former clitoris as the new penis head provides the same arc of sensation that transmits as sexual pleasure. In vaginoplasties where a new vagina is formed, the head of the former penis relocates to become the clitoris, while inversion of the remaining penile skin and scrotum produces a fully sensate vagina. (These are technical terms and don’t necessarily reflect the patients’ preferred terms for their genitals.)

Not all trans people choose surgical treatments, but for those who do, studies demonstrate that genital-­reassignment surgery is very effective. Individuals report relief of the symptoms of their dysphoria, low rates of regret, and high levels of patient satisfaction. The data that demonstrates this may rely on grim cost-benefit analyses of medical interventions, but they clearly show that gender treatments make a difference in the lives of many trans people. Gender surgery, like all surgery, reconfigures a body’s capacity to meet its own needs and, as such, can mean as much or as little of anything to anyone. For many I’ve seen, it can offer some liberation not only from dysphoria but also from the oppression they face when navigating gender in social contexts—being able to use gendered toilets without the fear of violence, or having the type of sex they want to have. Post-gender critiques that remonstrate against gender surgery for upholding physical gender norms re-enact the oppression they pretend to fight. I suspect they arise from an inability or refusal to conceive of others’ gender dysphoria. These critiques imply that trans individuals are to blame for somehow inadequately dealing with oppression.

It’s clear that there is no universal experience of dysphoria. Many trans people experience no genital dysphoria at all. For some, dysphoria is concentrated around noticing the incongruence between the gender they understand themselves as and the gender they are assigned. For others, dysphoria exerts itself as a visceral weight that can cause as much pain as physical injury, an unconscious process in which the body is the passive recipient of its distress.

Critics of gender surgery may be right that the link between genital anatomy and gender is dubious, but trying to deny trans people important surgery puts the emphasis in entirely the wrong place. In fact, more careful thought shows that the bodies of cis-gendered individuals have an equally problematic relationship to biological sex. Cis people’s identification of their anatomy with their gender also relies on the residual power the idealized forms of genitals have in our imagination. These forms are only attempts to capture reality, and are not reality itself. At the level of identity, genitals are made neither in the womb, nor in surgery, but in the mind.

Some accounts of the social construction of gender still maintain biological sex as a kind of underlying basis, to be either tolerated or changed. But the more I read and the more I see, the less certain I am about biological sex. Perhaps the body doesn’t automatically suggest gender as much as we think but has to be given a gender in order to operate in the world. If biological sex is less a case of a simple binary with pathologized aberrations and more like a spectrum, where does the binary originate from, how does science uphold it, and what motivates it to do so?

It could be that it arises from a tendency to explain the most things in the simplest possible terms, which would make sense given the relatively low prevalence of non-XX/XY chromosomes and ambiguous genitalia at birth. But even by this account, the perception of some people’s genital anatomy as normal relies on a socially upheld idea of gender. Bio-essentialist theories of gender are, ironically, inadequate as descriptions of the human body; all they account for is the persistence of the social construction of gender.

Born-this-way gender biology is a historical accumulation of empirical findings and personal subjectivities, precariously held together by the veneer of objective reality afforded by scientific method. The male/female binary is perpetuated by the myth that sex chromosomes are XX or XY, and XX and XY are perfectly formed penises or vaginas, and perfectly formed penises or vaginas are boys or girls, with all deviations from this entering the realm of pathology. But the idea that the body exists objectively is false. External genitals, like all other aspects of gender, are the result of interpretation. They can be reinterpreted.

Wednesday, December 4, 2013

Deformed Freak Born Without Penis (Satire as an Introduction to Intersex)

This bit of satire from The Onion generated some conversation at Facebook - and it brings up some issues about sexual and gender identity and intersex people. First up the story from The Onion:

Deformed Freak Born Without Penis

ISSUE 49•49 • Dec 3, 2013



The utterly disfigured creature, who sources say somehow has to make its way through life with no male genitalia whatsoever.

NORFOLK, VA—In an alarming case that has baffled and repulsed many, sources confirmed Tuesday that a severely deformed freak born without a penis has managed to live with the condition for over 26 years.

The bizarre, monstrous human specimen was reportedly born with no other noticeable maladies and has, amazingly enough, attempted to lead a normal, albeit severely impaired life despite possessing no male genitalia whatsoever.

“We first noticed something was off about three months into the pregnancy, and I was of course horrified,” said Dr. Mark Joules, the obstetrician who delivered the grotesque—some would say subhuman—abhorrence of nature. “You could clearly see in the ultrasound that a penis and testicles were not developing as one would hope—or at all, in fact—and we immediately knew something was terribly, terribly wrong.”

“Had we caught it earlier, we most likely would have recommended that the pregnancy be terminated,” Joules continued. “But it was unfortunately too late at that point, so we were forced to deliver the baby as planned and just pray that it could get by in that state. We did our best, but with such a horrible and incredibly crippling deformity, there wasn’t much hope to be had.”

According to reports, the sadly disfigured 26-year-old’s quality of life has been greatly diminished due to such a condition. Sources said the abnormal, visibly blemished creature has been repeatedly passed over for employment opportunities, frequently gawked at and harassed on the street by total strangers, and has faced near constant discrimination for over two decades, all due to the horrific and debilitating birth defect.

Indeed, many are reportedly unable to look past the glaring deformity and simply see the 26-year-old as a human being.

“Whoa, look at that,” said 31-year-old onlooker Grant Megson, who, like many others, gawked at the freakish human anomaly while passing by on the sidewalk. “I don’t mean to stare, but honestly, it’s hard not to. Jesus Christ.”

“I just wish some of my buddies were here to see this,” added Megson, smiling and taking one last look before continuing with his day.

Sources confirmed that, unfortunately, such cases are actually quite common, with roughly one in every two babies afflicted with the lifelong disfigurement.

However, that is reportedly little consolation to the malformed specimen’s father, who told reporters that a day doesn’t go by in which he doesn’t wish his child was born a normal, healthy baby with male genitalia.

“Sadly, because the deformity is so obvious, our child was treated very differently from all the other kids,” the father told reporters, admitting that he was incredibly upset and disappointed when he first learned that his baby would be born a freak, one to be mistreated and viewed as inferior its whole life. “Even though the doctors explained all the incredible challenges and prejudice the poor thing would face, I don’t think it really sunk in until after the birth, when I saw the disfigurement with my own eyes. You never want your child to have to grow up that way.”“But what can you do?” he added. “I’m just thankful that my other two kids weren’t born like that.”
* * * * *

One of the comments at Facebook mentioned that in Germany there has been an increase in children born with intersex features (or as not either clearly male or female). Intersex is much more common than people think - comprehensive statistics suggest 1 in 100 children are born with chromosome patterns other than the standard XX or XY. These are the numbers from the Intersex Society of North America:
Below we provide a summary of statistics drawn from an article by Brown University researcher Anne Fausto-Sterling.2 The basis for that article was an extensive review of the medical literature from 1955 to 1998 aimed at producing numeric estimates for the frequency of sex variations. Note that the frequency of some of these conditions, such as congenital adrenal hyperplasia, differs for different populations. These statistics are approximations. 

Not XX and not XYone in 1,666 births
Klinefelter (XXY)one in 1,000 births
Androgen insensitivity syndromeone in 13,000 births
Partial androgen insensitivity syndromeone in 130,000 births
Classical congenital adrenal hyperplasiaone in 13,000 births
Late onset adrenal hyperplasiaone in 66 individuals
Vaginal agenesisone in 6,000 births
Ovotestesone in 83,000 births
Idiopathic (no discernable medical cause)one in 110,000 births
Iatrogenic (caused by medical treatment, for instance progestin administered to pregnant mother)no estimate
5 alpha reductase deficiencyno estimate
Mixed gonadal dysgenesisno estimate
Complete gonadal dysgenesisone in 150,000 births
Hypospadias (urethral opening in perineum or along penile shaft)one in 2,000 births
Hypospadias (urethral opening between corona and tip of glans penis)one in 770 births

Total number of people whose bodies differ from standard male or femaleone in 100 births
Total number of people receiving surgery to “normalize” genital appearanceone or two in 1,000 births

For additional information on this topic, here is a documentary, Sex: Unknown.


Uploaded on Jan 17, 2011

Many babies are born intersex with genitals that did not fully develop in the womb. In such situations, most doctors declare a state of medical emergency, and quickly move to operate in an effort to "fix" the child and give it the appearance of either a male or female. But this intervention is not always welcome: Many intersex adults that were surgically changed in infancy now insist they should have been given a choice in the matter. In many cases the gender they were assigned at birth does not match the gender they grew to believe they were. This begs a larger question: How much of our gender identity is formed by nature and how much by nurture? "Sex: Unknown" delves into the complex world of gender identity.

Sunday, May 20, 2012

One in 2000 (Intersex Children)


A lot of social scientists argue over the nature/nurture aspects of gender identity, but there is also a whole other level of complexity. Around 1 in 2000 children is born without clearly defined sexual organs (according to this film), a condition now known as intersex.

According to the Intersex Society of North America, the overall prevalence of children whose sexual anatomy differs from standard male and female is 1 in 100 (a few of the conditions are listed below, there are many more less common ones at their site).
  • Not XX and not XY is one in 1,666 births
  • Klinefelter (XXY) births are one in 1,000 births
  • Total number of people whose bodies differ from standard male or female is one in 100 births
  • Total number of people receiving surgery to “normalize” genital appearance is one or two in 1,000 births

This film, One in 2000, looks at the reality of these people's lives.





One in 2000 

Synopsis

Every parent-to-be hopes for a "perfect" baby, but what does that actually mean? Every newborn is different, but some of those differences are scarier to parents than others. Each year an estimated one in two thousand babies are born with anatomy that doesn't clearly mark them as either male or female -- with what is known as an intersex condition. It's a situation that's hard to talk about; it challenges our preconceptions about how things are "supposed" to be.

This provocative documentary demystifies the issue of sexual difference. At a time when five babies a day in the United States are having "gender reassignment" surgery, it argues that there is little evidence that such surgery is beneficial to the child. The program profiles several people born with ambiguous sexual anatomy, who have managed to deal with some very difficult family and social issues, but today are living "ordinary" and productive lives. It also includes a young mother who is matter-of-factly creating the conditions for her intersex baby to do the same.

Interweaving their stories with educational films from the 1950's, ONE IN 2000 invites us to take a serious second look at how the media have dealt with sexual "normality." It will be an invaluable tool for educating and sensitizing parents, young people -- and many in the medical community as well.

Film Credits

Director and Producer: Ajae Clearway

Tuesday, April 24, 2012

Bookforum Omnivore - Why Sex Matters

An is an interesting collection of links from Bookforum - why sex matters. Interesting articles on transgender and intersexuality.



Sunday, November 20, 2011

Documentary - Me, My Sex and I (on Intersexuality)



I found this at Top Documentary Films - it's a sensitive look at the experience and challenges of those born as intersex, not biologically male or female. Here is a useful definition of intersexuality from Wikipedia, along with the distinction between intersexuality and androgyny:
Intersex, in humans and other animals, is the presence of intermediate or atypical combinations of physical features that usually distinguish female from male. This is usually understood to be congenital, involving chromosomal, morphologic, genital and/or gonadal anomalies, such as diversion from typical XX-female or XY-male presentations, e.g., sex reversal (XY-female, XX-male), genital ambiguity, or sex developmental differences. An intersex individual may have biological characteristics of both the male and the female sexes.[1] Intersexuality as a term was adopted by medicine during the 20th century, and applied to human beings whose biological sex cannot be classified as clearly male or female.[2][3][4] Intersex was initially adopted by intersex activists who criticize traditional medical approaches to sex assignment and seek to be heard in the construction of new approaches.[5][6]

Some people (whether physically intersex or not) do not identify themselves as either exclusively female or exclusively male. Androgyny is sometimes used to refer to those without gender-specific physical sexual characteristics or sexual preferences or gender identity, or some combination of these; such people can be physically and psychologically anywhere between the two sexes.[7] This state may or may not include a mixture or absence of sexual preferences.[8][9]

When doctors encountered intersex children in the 1950s and 1960s (and even today) a sex was assigned to the child and the necessary surgeries were performed. Because it is generally easier to "make" female anatomy, that has tended to be the choice of parents and doctors.

A similar case, that of David Reimer, who was the patient of the infamous Dr. John Money, helped to change the way intersex was handled by doctors. David was born male, but was re-assigned as female when his penis was destroyed in a bad circumcision. Under the care of Dr. Money, who had done extensive work with intersex patients, he was raised as "Brenda," but he never really identified as female, so when puberty hit all hell broke loose for him. After returning to life as a male, he eventually married; but he later took his own life after suffering severe depression, financial challenges, and troubles in his marriage.

Dr. Money, who had worked with intersex patients, had developed a theory of gender identity that relied almost entirely on the social construction of gender.

According to Wikipedia,
The proposed revisions for DSM-5 include a change from using Gender Identity Disorder to Gender Dysphoria. This revised code now specifically includes intersex people as people with Disorders of Sex Development.[53] This move has been criticised by one intersex advocacy group in Australia,[54] and criticism from the intersex community has been lodged with the appropriate DSM5 subcommittee.[55]
Many people involved with intersex rights would prefer that their lives not be pathologized and that their lives be recognized as a third sex.

Sociological studies have challenged the idea that gender is socially constructed and that sex roles are exclusively binary.
The first sociologist to work on 'intersexuality' was Harold Garfinkel in 1967 using a method derived from sociological phenomenology he called ethnomethodology. He based his analysis on the everyday commonsense understandings of 'Agnes', a woman undergoing social and surgical gender reassignment.[31] Ethnomethodology was also used in 1978 by Kessler and McKenna, who argue that, while gender can be seen as a social accomplishment, cross-cultural studies render gender as problematic as they highlight how it is usually regarded as a fact, when it can be shown to be constructed in different ways. They point to different cultural approaches to gender roles, and how 'hermaphrodites' and 'berdaches' are incorporated socially, as disruptive to fixed ideas about sex, gender, and gender-roles. They argue that what we 'know' about gender is grounded in the 'everyday social construction of a world of two genders', where gender attribution seems more important than gender differentiation.[32]
With that background, here is the documentary.

Me, My Sex and I

Me, My Sex and IWhat is the truth about the sexes? It is a deeply-held assumption that every person is either male or female; but many people are now questioning whether this belief is correct.

This compelling and sensitive documentary unlocks the stories of people born neither entirely male nor female. Conditions like these have been known as intersex and shrouded in unnecessary shame and secrecy for decades.

It’s estimated that DSDs (Disorders of Sexual Development) are, in fact, as common as twins or red hair – nearly one in 50 of us.

The programme features powerful insights from people living with these conditions, and the medical teams at the forefront of the field, including clinical psychologist Tiger Devore, whose own sex when born was ambiguous.
Watch the full documentary now (playlist – 50 minutes)

Thursday, September 1, 2011

TEDxNorthwesternU - Alice Dreger: Is anatomy destiny?

[Cross-posted from Integral Options Cafe]




Another interesting TEDx Talk, from Northwestern University. I present this with some trepidation - in working with transgendered men (FtM), for many of the men I have spoken with and whose stories I have read, the body is ego-dysontic for them, so change is necessary (in their experience).

It would be great if there were no cultural stigma to be intersexed or cross-gendered, but ther reality is otherwise. For those who feel the need (not the want, but the literal need) to change bodies, we should help them do so and support their identity.
Alice Dreger works with people at the edge of anatomy, such as conjoined twins and intersexed people. In her observation, it's often a fuzzy line between male and female, among other anatomical distinctions. Which brings up a huge question: Why do we let our anatomy determine our fate?

Alice Dreger is a professor of clinical medical humanities and bioethics at the Feinberg School of Medicine of Northwestern University in Chicago. She describes her focus as "social justice work in medicine and science" through research, writing, speaking and advocacy.

She's written several books that study subjects on the edge of norm-challenging bodies, including One of Us: Conjoined Twins and the Future of Normal and Hermaphrodites and the Medical Invention of Sex and Intersex in the Age of Ethics.

She says: "The question that has motivated many of my projects is this: Why not change minds instead of bodies?"